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Showing posts with the label spinal tap

Feeling good!

No post yesterday - felt great enough to get caught up on work which felt really good to do.  Better sleep last night and feeling even better today. Still some weird pains in my hip and back of my head - assume the bones are healing.  The nausea is way less though most food does not seem appealing. Would prefer not to take the anti-nausea and see if I can not have the headache today. So today we get the spinal tap - and blood work.  Blood work next Monday and then back in the hospital next Thursday. But it's warm, we went for a 1.5 mile walk with the pups had steak and eggs (don't know why that tastes so good). I am just 6 lbs over my Naval Academy weight which is a little odd so trying to pack on a little more food this weekend knowing it is going to get a lot worse. My "coaches" (the survivors who went through this) are so key in getting through this and helping me work through what is happening.  It is interesting that when survivors hear you have cancer the...

Careful what you wish for

Well I wanted to get started and I get my wish. Problem is I have double hit large B cell lymphoma. Cells are mutating making them grow faster and harder to kill. Luckily NIH found the R EPOCH therapy regimen and got similar outcomes to regular lymphoma. The bad news is you get each chemo session over 5 days in the hospital every 21 days. Plus they may add another drug in between. Aggressive cancer equals aggressive treatment. The double hit describes the two mutations that are happening. (and yes double secret probation immediately flashed into my mind). You don't find that until a few days after the biopsy so this was a late breaking update to my diagnosis.  Quite the gut punch - but we kind of knew things were growing pretty fast. Not totally unexpected So a really really rough road ahead. But these guys got it down and they love our chances of kicking this just as hard as it’s kicking me.  I cannot tell you how great our team at MD Anderson was today - our doctor is pr...