Saba Beats Cancer

Feeling even better today. With the exception of my kidney readings, my blood numbers were really good yesterday and they stopped the zarxio. They always give me too much - don't know why. Mouth sores are almost gone and not impeding eating (and I finally had coffee after 5 days without) which is good because my appetite is back too. Got down to the lowest weight again - the usual with the evil methotrexate. Lee got me some cake and ice cream to push that back up. Exchanged emails with Dr. Fowler again on what is next. They have delayed chemo #6 a week to figure out what to do with the kidney issue and see if it improves. He is consulting with Dr. Wilson, who basically pioneered the R-EPOCH regimen, on my case - which is pretty cool. I think I mentioned it - but the survival rate of the fairly rare cancer I had was pretty dismal before R-EPOCH.  And this has only been a couple of years now that they developed it. And now the survival rates keep climbing as they get better and b...

So the MTX is just not leaving my body. My normal readings have been 1.5 or .77 after 24 hours, .15 after 48 hours and under 0.1 after 72 hours. This time I was 2.15 after 24 hours and .67 after 48 hours - and the MTX is doing a number on me. So they doubled the dose of the leucovorin to get out the MTX. And gave me some stuff to help my kidneys which did decrease the levels on the last blood test.  And I will get the double dose every 3 hours which is more than I normally get. Sadly - this causes some nausea and other side effects. yay. Don't know what what the chest x ray was for - nurse doesn't know either - but it didn't come back with any issues. So that's good. So - just tired, tired of this, ready to go home.  So let's hope this leucovorin does the job it's supposed to and the MTX is gone by tomorrow at noon.  Fingers crossed.