Appointment Update

The bad news - the snafu in getting my records over to MD Anderson delays my appointment.  They have to have the scans and slides from the biopsy. I was assured today that they went over from Methodist but they have not been received by MDH.  One of the benefits of MDH is I already have a patient advocate, Trish, who is helping me.

Because they do have my chart, they could schedule me for an appointment and got me in on Monday. Sigh.  But the awesome news is I have an appointment with a Lymphoma Rock Star Doc. We will be meeting with Dr. Nathan Fowler on Monday, February 25th at noon.

What's annoying is now my throat hurts and feels like I have swollen lymph nodes there now as well.  Huge shooting pain in the jaw today and the double vision was bad yesterday. So really need to get the party started on treatment and start reversing this crap.  oh well.

One great gem from reading my medical record yesterday as I sent it to MDH -
"David Saba is a pleasant 57 y.o. male with h/o HTN who presents with right hip pain"

Oh hell yes.  I am damn pleasant!!!

Comments

Post a Comment

Popular posts from this blog

They call me Complete Remission

Image
Not even kidding.  Below are the scans. The one on the left is me riddled with cancer in February -the one on the right is  me today in comp lete remission. This doesn't mean I am cured - it just means that after two cycles of treatment we saw " a diminution of the seriousness or intensity of disease or pain; a temporary recovery."   So now we go for the cure. Note - there is nothing going on in the brain (joke intended), nothing going on in the spine and nothing going on in the lymph nodes.  Yes, we have no cancer.  Even the doc was a little surprised at how well my body responded to the treatment.  For all those who worked so hard to keep my spirits up - it worked. To the prayer warriors around the country who kept lifting us up in your prayers - it worked.  Team Saba has a huge victory today and we thank you all.  We are still going in for Chemo #3 but it got delayed since my body has not fully recovered from all the other crap that has been pumped into it. B
Read more

I have eyebrows dammit!!!

Image
What a great feeling to have hair growing in the right places now!  Eyebrows, eyelashes and hair on my head all coming in nicely. Hard to believe that it has only been a month since chemo ended - because things are so normal. On Friday I actually got my first full paycheck since February - now that's a good feeling! Based on all I read and heard from others, I am way ahead of the game on recovery working 8 hour days and doing very well.  Every so often I get a feeling like chemo side effects but then it goes away.  So other than that I am doing great. Side note on the blood work - the webisphere was correct - cranberry juice does help the kidneys but my platelet count went down. The only thing on my blood work that went down - I was still in the good range so no big deal, but important thing to note. And it's probably good that the beach house is rented through August - we won't be able to use it until Labor Day weekend - so guy recovering from cancer just died from
Read more

This is Spinal Tap!

Most people get a 10 spinal tap - I got an 11. Actually called a Lumbar Puncture but where's the fun in that.  And I have to admit that sounds bad - who wants their lumbar punctured. Anywho - sorry about the semi depressing post yesterday - got a little overwhelmed by the enormity of the task at hand for a few hours.  Plus the exhaustion -but a friend reminded me that thank God we live here with MD Anderson who can make all that happen in just two days. Felt really good this morning.  I know so many of you have put me in your prayers and thoughts -and I can/t help but believe when I wake up feeling good that it is those thoughts and prayers giving me that much needed boost -so thank you for that. Love you all. So we are set for tomorrow - LET THE CHEMO BEGIN! We check in with the amazing Dr. Fowler at 1:30 PM and get the full and final diagnosis -hopefully know what is going on in my skull - and then move forward with the treatment.  Should be a 5 day hospital stay, followe
Read more